Roman

Roman patientMum Scarlet found she and partner Ben were in a lonely place when their son Roman was diagnosed with a rare disease. But at Keech Hospice Care, they could talk to professionals and get advice from other parents when they were thinking, ‘How are we going to cope?’

“We’d never had anything to do with a hospice and I couldn’t help but think the worst. I was scared but, when we got inside, we found it was just beautiful. Roman absolutely loved it, particularly the charity’s sensory room and its amazing hydrotherapy pool.

Sadly, Roman began to lose his ability to walk, talk and eat by himself. It was hard because no-one knew what was really coming. One day, I was playing with my little boy and the next he couldn’t sit up anymore. It was heart-breaking.

Roman needed round-the-clock care and we’d come to Keech Hospice Care for overnight stays, which gave Ben and I the chance to be parents to our younger son, Gabriel, now 2.

Roman spent eight days at Keech Hospice Care after he died. If we hadn’t had that time with him as a family, I know I wouldn’t be standing now.

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But in March this year we were told Roman didn’t have long to live.Ben and I were getting married on 1 April and Roman had promised us he’d be his daddy’s best man, and he was. But, without the nursesfrom Keech Hospice Care, our big day wouldn’t have been possible.Two of the nurses came and cared for Roman, and once we’d tied the knot, they took him back to the hospice. It was a truly magical day.

Ten days later, Roman died at home.

Dr Paula Ann from Keech Hospice Care stayed at our house. A Keech nurse then arranged for Roman’s body to be taken to the beautiful room at the hospice called the Meadow Suite. It might surprise you, but Roman spent eight days at Keech Hospice Care after he died. If we hadn’t had that time with him as a family, I know I wouldn’t be standing now.

Three months after Roman died, 30 of our family and friends took part in Keech Hospice Care’s Colour Dash and raised an incredible £6,000.

We can never repay what Keech has done for us but we will do anything we can to help raise the money they need to keep helping other families like ours.”

When it seems as if nothing will be the same again, Keech Hospice Care is there, free of charge. But we receive only 70% of our funding for from the NHS. We rely on the generosity of our supporters to continue making the difference when it matters the most. Will you help us help more families like Roman's? Call us to find out more on 01582 707940 or email letmehelp@keech.org.uk

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